pediatric endocrinologist

Phoenix had his appt with his pediatric endocrinologist today. After looking at Phoenix's previous blood glucose levels and all the information I brought, Phoenix was diagnosed as pre-diabetic. He had his A1C test which tells you the average blood glucose level during the past 3 months, it was normal at 5.5 so it looks like we've just caught this at the very beginning, also called the "honeymoon period". He's having more testing done and will have to be seen every 2-3 months. The dr sounded pretty confident that Phoenix will have type 1 diabetes, we just don't know when - it could be in 2 months or 2 years. We don't have to restrict his diet ever, and he's not being put on insulin yet but we do have to test his blood 3-5 times a day. I really liked the pedi endo and his nurse. They all did a great job. The dr was really informative and laid-back but proactive at the same time. Phoenix had more blood tests to test for diabetes antibodies and some other stuff and we'll get those results in a few days. He did awesome though, and this endo office has a "toy bin" only it's not a bin and it is not toys like you'd think a drs office would have - Phoenix got the Shoots and Ladders board game, a new teddy bear and coloring crayons - they were trying to find him a coloring book too but I said he was okay! The nurse was like "I'm sorry, we'll have better toys for him next time." Even though we are dealing with this now, at least he's being taken care of and everyone is super friendly.

Pediatric Oncologist = ass

Today is Ethan's birthday and, this morning, we went to the pediatric oncologist. Our friend got us in to see him, just incase it may be cancer. I have to say - I feel slightly better, but no by much. The doctor said that it didn't feel like cancer and that it was probably just swollen lymph nodes - though he didn't have any evidence to support that conclusion. He told us there are no blood tests that can pick up lymphoma, especially if it's in the early stages. He also said that no surgeon would take the lumps out - that they would laugh at us because they are so small. He seemed to be missing the point - the he has lumps in his neck and they are growing. That has to be something. It's not normal. But, the doctor seemed to have his mind made up before he even came in the room. So, we are just continuing on the path to meet with the ENT in a few weeks. 

Diabetes?

After throwing up this morning and no dairy involvement, we began to wonder what was going on with Phoenix. My dad asked if it could be blood sugar related and I started thinking about it, and it didn't sound crazy. So, about 1½hrs after eating 5 saltines and a strawberry, I tested his blood sugar - it was 317. Thinking it was a fluke or that readings for kids are different I decided to wait and retest. A little over an hour later (more than 2½ hrs after eating) his blood sugar was now 263. I also happened to have glucose test strips and his glucose in his urine was off the charts high. So, of course, I called the dr and she wanted him to come in right away. He'll be having a fasting blood test Monday morning but, even the dr thinks he might be diabetic. If he is it could explain so much - the throwing up, the behavioral problems, maybe even the lump. We'll just have to wait and see. Fortunately the fasting blood draw only takes 24 hrs to get the results from. If it's high then we repeat it. Two high fasting blood draws above 126 mean he has juvenile diabetes. I know it would suck but, I would much rather it be diabetes (which we can treat) than cancer or SPD. I feel like we are on that mystery diagnosis show.